Guide III-080

Supportive-expressive group therapy for cancer

David Spiegel, Irvin Yalom1977Stanford
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[source: …] where a claim comes from[uncertain] not confirmed in a primary source[synthesis] the writer's reconstruction

1. Introduction

Version followed: the Stanford model of David Spiegel and colleagues (Psychosocial Treatment Laboratory / Center on Stress and Health, Stanford), in its ongoing weekly format for metastatic breast cancer as summarised in Stanford's training materials and the Classen et al. trial. Variants covered: the brief time-limited version for primary breast cancer (Classen, Diamond, Soleman, Fobair, Spira & Spiegel manual), the Melbourne replication (Kissane et al. 2004) and a German 12-session short module (Reuter, Freiburg). Details attributed only to the Stanford manuals or the Spiegel & Classen (2000) handbook are tagged [uncertain]. [source: Stanford Treatment Manuals page; Stanford Training DVD page]

What it is. Supportive-expressive group therapy (SEGT) is a professionally led, unstructured, process-oriented group for people with cancer, originally women with metastatic breast cancer. Spiegel developed it at Stanford in the late 1970s with Irvin Yalom, and it is rooted in Yalom's existential psychotherapy and interpersonal group therapy. Members meet weekly with co-leaders. There is no didactic curriculum: leaders keep the group focused on the members' real, present concerns about living with cancer, including dying. [source: Reuter abstract (Thieme); Classen et al. 2001 abstract; Spiegel, Bloom & Yalom 1981]

How change is thought to happen. Facing illness-related fears directly, including death, in a supportive group of peers makes those fears less overwhelming ("detoxifying" them). Expressing rather than suppressing illness-related emotion supports active coping. Mutual support reduces isolation, and helping others restores a sense of usefulness. Facing the reality of limited time helps members reorder their priorities and live more fully. Members also learn to deal more effectively with family, doctors and symptoms such as pain. In Spiegel's words, group support helps people "hope for the best, and prepare for the worst." [source: Duke Health 1997; Stanford Training DVD page; Classen et al. 2001 abstract] In the Melbourne account, a mature group moves toward "creative living": humour, celebration, assertiveness, altruism, new creative pursuits and eventually courageous acceptance of dying. [source: Kissane et al. 2004 abstract]

2. Framework

SEGT is not organised into prescribed session-by-session phases. Its structure comes from fixed format, standing goals and recurring themes that leaders follow as they arise. The phases below describe how groups develop, not a protocol. [source: Reuter abstract ("non-prestructured"); Kissane et al. 2004 abstract]

Format by version

  • Stanford, metastatic (original and main version): closed or slowly open groups of women with metastatic breast cancer. They meet weekly for 90 minutes, usually for at least one year, sometimes open-ended. Two co-leaders run the group. In the Classen et al. (2001) trial: one year of weekly sessions plus educational materials. [source: Classen et al. 2001 abstract; Stanford Training DVD page; 90-minute length and group size of about 8–12 from Spiegel & Classen 2000, [uncertain]]
  • Canadian multicentre trial (Goodwin et al. 2001): weekly SEGT for women with metastatic breast cancer expected to live at least 3 months. Benefit for mood and pain was concentrated in women who were more distressed at baseline. [source: Goodwin et al. 2001 abstract] Practical implication: prioritise referral of distressed patients [synthesis].
  • Brief Stanford version for primary (non-metastatic) breast cancer: a time-limited treatment manual exists (Classen, Diamond, Soleman, Fobair, Spira, Spiegel). It is commonly reported as 12 weekly sessions [uncertain: manual]. [source: Stanford Treatment Manuals page]
  • German short module (Freiburg): 12 sessions, 6–8 outpatients who share the same tumour diagnosis, unstructured and process-oriented. Themes: existential anxiety, changed body and self-image, loss of roles and tasks, death and dying. [source: Reuter abstract (Thieme), German, paraphrased]
  • Adaptations: Stanford also published SEGT primers for HIV and for gynaecological cancer groups. [source: Stanford Treatment Manuals page]

Developmental phases (descriptive, Melbourne). Kissane et al. (2004) report that SEGT groups move through identifiable developmental phases toward creative living. The abstract does not name the phases. The working sequence below is my synthesis, used to judge where a group is. [source: Kissane et al. 2004 abstract; phase content [synthesis]]

Phase (synthesis)GoalsSigns you can move on
Forming (roughly first 4–8 sessions)Build bonds, set norms of directness and confidentiality, share illness storiesMembers address each other rather than the leaders; members begin bringing personal, emotional material
Working on fears and lossesDetoxify dying, express grief and anger, deal with family and doctorsDeath can be named without the group shutting down; members tolerate differences in outlook
Living with losses in the groupMourn members who die; integrate recurrence and declineThe group can mourn and keep going; new members are taken in
Creative livingReorder priorities, act on them, celebrate, approach one's own dying with courageHumour, altruism, new projects, assertiveness with clinicians

For time-limited versions, the final 2–3 sessions should explicitly cover ending: what members take with them, ongoing contact, and referral onward [synthesis].

Standing goals (Stanford). Build mutual support and a direct, emotionally expressive, non-defensive atmosphere. Help members face fears of dying openly. Use the nearness of death to reassess life priorities. Improve communication with family. Help members deal more effectively with doctors and staff. Teach simple self-hypnosis for pain. [source: Stanford Training DVD page; Classen et al. 2001 abstract]

Seven themes. Spiegel & Classen (2000) are widely cited as organising SEGT around seven themes: building bonds, expressing emotions, detoxifying dying, redefining life priorities, fortifying families and friends, improving the doctor–patient relationship, and improving coping skills. [uncertain: book; the list matches the goals on Stanford's DVD page]

3. Guiding principles

  • Unstructured and process-oriented. No agenda or lecture. Work with what members bring, as it arises. [source: Reuter abstract]
  • Face the illness directly without being overwhelmed. Help members look squarely at the worst, in manageable pieces. [source: Duke Health 1997]
  • Hope for the best, prepare for the worst. Hold hope and realism together and do not force a choice between them. [source: Duke Health 1997, Spiegel quote]
  • Expression over suppression. Invite feelings about cancer (fear, anger, grief) and help the group stay with them rather than smooth them over. [source: Classen et al. 2001 abstract; Stanford Training DVD page]
  • Support comes from members, not mainly from leaders. Leaders redirect toward member-to-member contact and encourage support networks among members. [source: Duke Health 1997; Stanford Training DVD page]
  • Directness and non-defensiveness. Model plain speech about cancer, prognosis and dying. Gently name avoidance. [source: Stanford Training DVD page]
  • Death is a legitimate, central topic. Treat fear of dying as material to be worked through, not a symptom to be soothed away. [source: Stanford Training DVD page ("detoxifying death")]
  • Mortality as a spur to living. Use the nearness of death to help members reassess priorities and act on them. [source: Stanford Training DVD page; Kissane et al. 2004 abstract]
  • Active coping, broken into pieces. Help members split overwhelming worries into separate problems they can address one at a time. [source: Duke Health 1997]
  • Control of internal experience. Teach self-hypnosis so members gain some control over pain and anxiety. [source: Duke Health 1997; Stanford Training DVD page]
  • Members are agents with their medical team. Coach assertive, informed dealings with doctors. Openly explore health beliefs and treatment attitudes, which Kissane calls "medicalization" of the group culture, because this may support adherence. [source: Stanford Training DVD page; Kissane et al. 2004 abstract]
  • Leaders hold the boundaries and safety of the group. Leaders are responsible for the frame and for containing intense affect. [source: Duke Health 1997]
  • Contain ambivalence and difference. Allow differing outlooks (fighting versus accepting, hope versus realism) without splitting the group into camps. [source: Kissane et al. 2004 abstract, which lists these as challenges]
  • Be personal and here-and-now. Steer from general talk about cancer toward each member's own experience, especially what is happening in the room. [uncertain: attributed to Stanford training (Spiegel & Classen 2000); consistent with the Yalom roots stated in the Reuter abstract]

4. Intervention inventory

SEGT's "interventions" are leader moves inside an unstructured group, plus one taught skill (self-hypnosis). The inventory below covers every leader task and theme named in the sources. Step sequences are my operationalisation unless tagged otherwise, because the step-level Stanford manuals are not drawn on here. [source for the list of tasks and themes: Stanford Training DVD page; Duke Health 1997; Classen et al. 2001 abstract; Kissane et al. 2004 abstract; operational steps [synthesis]]

4.1 Member selection and pre-group preparation

  • Purpose / when: before a member joins. Composes a workable group and prepares each member for open talk about dying.
  • Steps: (1) Confirm the diagnosis fits the group (Stanford: metastatic or primary breast cancer, by group; Freiburg: same tumour type). [source: Stanford manual titles; Reuter abstract] (2) Screen for acute psychosis, active substance misuse, cognitive impairment that prevents participation, and imminent suicide risk needing individual care first. (3) Explain the format: weekly, ongoing or fixed length, unstructured, talk about real fears including death, other members may get worse or die. (4) Ask what they hope for and what they fear about joining. (5) Agree on attendance and confidentiality. [steps (2)–(5) [synthesis]] Prioritise patients with higher distress, who benefited most in the Canadian trial. [source: Goodwin et al. 2001 abstract]
  • Example language (illustrative): "This group talks openly about everything cancer brings, including fears about getting sicker and dying. Some people find that hard at first. Does that fit what you're looking for?"
  • Watch for: a patient who wants only information or positive thinking. Offer psychoeducation or another group instead [synthesis].

4.2 Setting the frame and group norms

  • Purpose / when: first sessions, and again when new members join. Leaders are responsible for boundaries and safety. [source: Duke Health 1997]
  • Steps: (1) State the norms: confidentiality, regular attendance, telling the group about absences, speaking from one's own experience, no topic off-limits. (2) Encourage members to support each other between sessions (calls, visits) and say this is welcome. [source: Duke Health 1997 (support networks among members); specific norms [synthesis]] (3) Model directness yourself from the first session.
  • Example language (illustrative): "Nothing is too frightening or too small to bring here. What's said here stays here."
  • Watch for: members testing whether death really can be spoken about. Respond calmly and directly.

4.3 Opening the session

  • Purpose / when: start of every session. Brings in the week's medical news and feelings.
  • Steps: (1) Brief go-round or open invitation for news: scans, treatment changes, symptoms, events. (2) Note who is absent and why, and anyone who is unwell. (3) Pick up an emotionally live thread rather than finishing the round mechanically. [source: check-in practice [uncertain]; the Stanford Training DVD's model session includes opening remarks but its content was not viewed]
  • Example language (illustrative): "Let's hear how everyone's week has been. Joan, you had your scan results due."
  • Watch for: the round turning into a series of medical reports with no feeling. Ask: "And how was that for you?"

4.4 Building bonds (member-to-member support)

  • Purpose / when: throughout, especially early. Mutual support is a central goal and therapeutic factor. [source: Stanford Training DVD page; Duke Health 1997; Classen et al. 2001 abstract]
  • Steps: (1) When a member speaks to the leader, redirect: invite others to respond to her. (2) Link members with similar experiences. (3) Notice and name moments of help between members. (4) Invite members who have been through a stage to offer what helped, not advice. Spiegel notes that members discover they can teach others about coping. [source: Duke Health 1997 for (4); (1)–(3) [synthesis]]
  • Example language (illustrative): "Mary, you went through that same decision last spring. What was it like for you?" / "I notice several of you were nodding while Ann spoke."
  • Watch for: rising cohesion: members address each other, phone each other, and ask after absent members.

4.5 Facilitating emotional expression

  • Purpose / when: whenever cancer-related emotion surfaces or is being kept down. Expressing and managing disease-related emotion is a core aim. [source: Classen et al. 2001 abstract; Duke Health 1997]
  • Steps: (1) Notice affect (tears, a shift in voice, a joke covering fear). (2) Slow down and name it tentatively. (3) Invite the member to say more and invite others to respond. (4) Let anger, including anger at doctors, at the illness or at the group, be expressed without rushing to resolve it. (5) Before moving on, check that the member is not left alone with it. [steps [synthesis]]
  • Example language (illustrative): "You said that very lightly, but it sounded frightening." / "It's all right to be furious about this."
  • Watch for: expression should lead to feeling understood and calmer, not escalating flooding (see 5.3). Kissane warns of "non-containment of ambivalence". [source: Kissane et al. 2004 abstract]

4.6 Keeping it personal, specific and present

  • Purpose / when: when talk becomes general, intellectual, about others' cases or about treatments in the abstract.
  • Steps: (1) Ask for the member's own experience. (2) Ask for a specific instance. (3) Bring it into the room: how is it to say this here, to these people? [source: Yalom-derived here-and-now orientation [uncertain]; Reuter abstract (Yalom roots)]
  • Example language (illustrative): "We've been talking about statistics. What does this mean for you?" / "What's it like to hear Linda say that, given your own scan next week?"
  • Watch for: talk moving from "one" and "they" to "I" and "you".

4.7 Detoxifying dying

  • Purpose / when: core SEGT task, whenever death, recurrence or decline is hinted at, or when a member worsens or dies. Aim: help members face fears of death openly so the fear becomes less overwhelming. [source: Stanford Training DVD page (Parts 1, 2 and 4); Duke Health 1997]
  • Steps: (1) Do not deflect hints ("if things go badly" or "when I'm not here"). Name them. (2) Invite the member to say what specifically she fears. (3) Separate the fear of death into its parts: dying in pain, losing control, being a burden, leaving children or partner, the unknown, unfinished business. Spiegel's groups divided overwhelming concerns into separate addressable problems. [source: Duke Health 1997 for the breakdown principle; the list of parts [synthesis]] (4) For each part, ask what could be done (pain control, advance planning, conversations with family) and what must be borne. (5) Ask others to share their own fears and what has helped. (6) Link facing death to how to live now (see 4.9).
  • Example language (illustrative): "You said 'if it comes back'. Can we talk about what you're most afraid of if it does?" / "When you picture the end, what part frightens you most?"
  • Watch for: relief after naming a fear, practical planning and less avoidance. Detoxifying is not forcing: a member may need to approach the topic gradually (see 5.2 and 5.3).

4.8 Active coping: breaking problems down

  • Purpose / when: when a member feels overwhelmed by a mass of worries. [source: Duke Health 1997]
  • Steps: (1) Ask her to list what is weighing on her. (2) Separate the items. (3) Sort what can be acted on from what must be lived with. (4) Ask the group for ideas on one actionable item. (5) Agree on a small next step and ask about it the following week. [steps [synthesis]]
  • Example language (illustrative): "That's a lot at once. Let's take it apart. What's the one that keeps you awake?"
  • Watch for: the group giving a pile of advice. Keep the member choosing.

4.9 Redefining life priorities

  • Purpose / when: when mortality is in view, after a recurrence, at milestones, or when a member is busy with obligations she doesn't value. Uses the nearness of death to reassess priorities and make decisions. [source: Stanford Training DVD page]
  • Steps: (1) Ask what matters most now, given limited time. (2) Ask what she is still doing that doesn't matter, and what she is postponing. (3) Help her name one concrete change. (4) Invite the group to witness and follow up. (5) Notice and celebrate changes when they occur (creative living). [source: Kissane et al. 2004 abstract for creative-living markers; steps [synthesis]]
  • Example language (illustrative): "If you knew you had a year, what would you stop doing, and what would you start?"
  • Watch for: new creative pursuits, saying no, reconnecting with people. All of these are named markers of a mature group. [source: Kissane et al. 2004 abstract]

4.10 Fortifying families and friends

  • Purpose / when: when a member describes protective silence at home, conflict, or worry about children or partner. Improving communication with family is a stated goal, coached in the Stanford DVD series. [source: Stanford Training DVD page; Classen et al. 2001 abstract]
  • Steps: (1) Ask what has and hasn't been said at home, and who is protecting whom. (2) Help her name what she wants to say or ask for. (3) Rehearse in the group: she says it to a member, or tries out wording aloud. (4) Ask the group how they handled similar conversations. (5) Follow up next week. [steps [synthesis]; rehearsal format [uncertain]]
  • Example language (illustrative): "What would you want your husband to know that you haven't told him?" / "Try saying it to Carol now, as if she were him."
  • Watch for: reports of more open talk at home and fewer secrets. Respect cultural and family norms about disclosure [synthesis].

4.11 Improving the doctor–patient relationship and "medicalizing" the group

  • Purpose / when: when members feel unheard, intimidated, uninformed or in conflict with clinicians, or are hesitating over treatment. Coaching members on dealing with doctors is a core Stanford goal. Kissane describes "medicalization" of the group culture: members and co-therapists openly explore health beliefs and attitudes to care, which may support starting and continuing anti-cancer treatment. [source: Stanford Training DVD page (Part 3); Kissane et al. 2004 abstract]
  • Steps: (1) Ask what happened at the appointment and what she felt. (2) Clarify what she wants: information, a change, to be heard. (3) Help her write two or three questions and rehearse asking them assertively. (4) Invite members to share strategies (bringing someone, taking notes, asking for a longer appointment). (5) When a member doubts or refuses treatment, explore the beliefs and fears behind it, with the group, without pushing a decision. Encourage her to take the questions back to her oncologist. [steps [synthesis]] Leaders do not give medical advice. A co-leader with oncology knowledge helps [synthesis].
  • Example language (illustrative): "What did you want from Dr X that you didn't get?" / "What's making you hesitate about starting chemo? Let's hear the worries properly."
  • Watch for: members arriving with questions answered and decisions made actively. Watch for the group turning against medicine or one doctor (splitting; see 5.6).

4.12 Self-hypnosis for pain and anxiety

  • Purpose / when: taught to the group for pain, anxiety and a sense of control. Often practised near the end of a session. Spiegel says that as members learn to manage their internal experience of pain, they feel some control over it. [source: Duke Health 1997; Stanford Training DVD page (Part 3); end-of-session placement [uncertain]]
  • Steps (described qualitatively; the technique comes from Spiegel & Spiegel, Trance and Treatment, so details are [uncertain]): (1) Brief rationale: hypnosis is focused attention the member controls, not sleep. (2) Induction: a short focusing procedure. In the Spiegel tradition, the eyes roll upward, then close, followed by slow breathing and an image of the body floating. (3) In the floating state, invite a comfortable image (a safe place) for anxiety. For pain, invite an imagined altering sensation in the painful area (warmth, coolness, numbness, lightness), or attention moved to another part of the body, so the hurt is filtered from the sensation. (4) Brief return with a cue to come out of trance. (5) Teach members to use it on their own several times a day, briefly. [steps as described in the Spiegel hypnosis literature [uncertain]]
  • Example language (illustrative): "Let yourself float, as if in a warm bath. Let the area that hurts feel cool and numb, as if packed in snow. Then let yourself come back, keeping the comfort."
  • Watch for: members reporting less pain and a sense of control. Do not use as a substitute for medical pain management. Use caution with hypnosis in members with psychosis or dissociative disorders [synthesis]. Members with low hypnotisability may benefit more from simple relaxation [synthesis].

4.13 Responding to a member who talks of suicide

  • Purpose / when: a member says she would rather end her life than face decline. The Stanford DVD shows the leader responding with a life-affirming perspective in the group. [source: Stanford Training DVD page (Part 1)]
  • Steps: (1) Take it seriously and stay calm. Do not change the subject. (2) Invite her to say what she fears, such as pain, dependency or being a burden, and work on those fears through detoxifying dying (4.7). (3) Invite the group to respond. Other members often speak to the value of her life to them [synthesis]. (4) After the session, carry out a standard individual risk assessment (intent, plan, access, history, protective factors). Arrange safety planning and liaise with the oncology and palliative team. Lethal-means counselling covers safe storage and removal of stockpiled medications only. [synthesis; current standard practice] (5) Distinguish passive wishes for death and legitimate questions about end-of-life care from active suicidal intent, and refer to palliative care as appropriate [synthesis].
  • Example language (illustrative): "I'm glad you said it here. What is it about what's ahead that feels unbearable?"
  • Watch for: the specific fear being named and addressed. Escalating intent requires individual intervention.

4.14 Responding to members' decline, absence and death

  • Purpose / when: recurrence, hospitalisation, a member too ill to attend, a member's death. In metastatic groups these events are expected, and working through them is central to detoxifying dying. [source: Stanford Training DVD page; Duke Health 1997]
  • Steps: (1) Tell the group promptly about a member's hospitalisation or death and give time for it, even if it takes the session. (2) Invite memories, grief, and fear about one's own death ("will that be me?"). (3) Keep ties with very ill members if possible: calls, cards, visits. Duke reports a homebound member leading the group's meeting from her bed two weeks before she died; members took turns hosting. [source: Duke Health 1997] (4) Mark the death with some shared ritual (empty chair acknowledged, attending the funeral) [synthesis]. (5) Watch for survivor guilt and withdrawal in remaining members [synthesis].
  • Example language (illustrative): "Before anything else, we need to talk about Helen. I'm sorry to tell you she died on Thursday."
  • Watch for: the group mourning and continuing, versus sudden absences or talk of quitting (see 5.7).

4.15 Supporting creative living

  • Purpose / when: mature groups. Leaders welcome and reinforce humour, celebration, assertiveness, altruism and new creative projects as signs of growth. [source: Kissane et al. 2004 abstract]
  • Steps: (1) Notice and name these moments. (2) Allow celebrations (birthdays, anniversaries, completed treatment). (3) Support altruistic acts (helping newer members, advocacy). (4) Do not mistake laughter for avoidance when it coexists with depth. [steps [synthesis]]
  • Example language (illustrative): "This group can laugh hard and cry hard in the same hour. That says something about you."
  • Watch for: courageous acceptance of dying as an end point. Do not impose it as a goal. [source: Kissane et al. 2004 abstract]

4.16 Closing the session

  • Purpose / when: last minutes of each session.
  • Steps: (1) Signal time. (2) Check that no one leaves in acute distress, and arrange individual contact if needed. (3) Optionally lead the self-hypnosis exercise (4.12). (4) Note anyone who will be absent or is having treatment, and encourage contact between sessions. [steps [synthesis]; the Stanford DVD Part 4 includes a closing but its content was not viewed [uncertain]]
  • Example language (illustrative): "We have a few minutes. Before we stop, is anyone leaving with something heavy they need us to know about?"
  • Watch for: members routinely leaving overwhelmed. Pace the session better (see 5.3).

4.17 Ending a time-limited group

  • Purpose / when: brief versions (for example, 12-session modules). [source: Reuter abstract; Stanford brief manual title]
  • Steps: (1) Announce the ending at least 3 sessions ahead. (2) Ask each member what she takes away and what remains open. (3) Allow feelings about the loss of the group, linking them to other losses. (4) Discuss continued informal contact and referral routes (ongoing groups, individual therapy, palliative psychosocial care). [steps [synthesis]]
  • Example language (illustrative): "We have three meetings left. What do you want to make sure we talk about before we finish?"
  • Watch for: members missing the last sessions to avoid the goodbye. Name this ahead of time.

5. Handling problems

The Melbourne SEGT team names five group-level challenges: avoidance, non-containment of ambivalence, intolerance of difference, anti-group phenomena, and splitting. [source: Kissane et al. 2004 abstract] The abstract names these problems but not responses to them. All responses below are my synthesis unless tagged otherwise.

5.1 Stuck group or stuck member (repetitive medical reporting, no depth). Comment on the pattern rather than the content: "We've spent most of today on treatment details. I wonder what we're not talking about." Ask a quiet member directly but gently. Bring in the theme that is likely being avoided, such as a recent scan or an absent member. [synthesis]

5.2 Avoidance of death and of difficult feelings. A named SEGT challenge. [source: Kissane et al. 2004 abstract] Respond: (1) Name the avoidance tentatively ("Every time Sue mentions hospice, we change subject"). (2) Approach in graded steps: talk first about others' fears, then one's own, then specifics. (3) Accept that some members will approach dying slowly. Detoxifying is invitational, not forced. [synthesis] Leaders' own avoidance is a common cause: use supervision [synthesis].

5.3 Overwhelm and non-containment. Signs: a member flooded with panic or grief, the whole group escalating, members leaving distressed. Kissane names non-containment of ambivalence as a challenge. [source: Kissane et al. 2004 abstract] Respond: slow the pace, and reflect and summarise the feeling. Help the member hold both sides ("part of you wants to fight on, part of you is exhausted") rather than resolve them. Shift briefly to practical coping (4.8) or the self-hypnosis/relaxation exercise (4.12). Ensure no one leaves in acute distress. Offer individual follow-up for members repeatedly overwhelmed. [synthesis]

5.4 Intolerance of difference. Examples: a positive-thinking member versus one facing death, metastatic versus primary members, treatment-refusers versus treatment-adherers. [source: Kissane et al. 2004 abstract names the challenge] Respond: make room for each position as a way of coping, and name the shared fear underneath. Discourage moral language such as "giving up" or "in denial". Ask, "Can this group hold both of these?" [synthesis] Group composition by disease stage reduces this (Stanford ran separate groups for primary and metastatic disease; Freiburg uses same-diagnosis groups). [source: Stanford Treatment Manuals page; Reuter abstract]

5.5 Anti-group phenomena. Signs: lateness, absences, attacks on the group's value, sub-grouping, "this group just makes me depressed". [source: Kissane et al. 2004 abstract names the challenge] Respond: treat these as communications, often about fear of contagion of death or of the next loss. Raise them in the group, link them to recent events (a death, a recurrence) and invite the feelings. Hold the frame consistently. [synthesis]

5.6 Splitting. Examples: good versus bad leader, good versus bad doctor or hospital, the group versus medicine. [source: Kissane et al. 2004 abstract names the challenge] Respond: co-leaders debrief after every session and present a united frame. Reflect both sides. In medical splitting, explore beliefs openly (4.11) while supporting the member's relationship with her treating team. Liaise with the oncology team when misinformation spreads. [synthesis]

5.7 Non-attendance and dropout. Causes are often medical: treatment, fatigue, hospitalisation. Members may also stay away after a death or when their own disease progresses. Respond: phone absent members, and distinguish being too ill from avoidance. Keep ill members connected (calls, home or hospital visits, a meeting hosted at home as Duke describes). [source: Duke Health 1997 for home-hosted meeting; rest [synthesis]] Name group patterns of absence after losses.

5.8 Ruptures with leaders. Examples: anger at a leader who "pushed" on death, or who is healthy and "can't understand". Respond: invite the anger openly, acknowledge your limits and any misstep, and stay in the room with it. Model non-defensiveness, which is itself a stated SEGT aim. [source: Stanford Training DVD page (non-defensive atmosphere); responses [synthesis]]

5.9 Monopolising, advice-giving and "cheerleading". Respond: thank the member and widen to others' experience. Convert advice into personal sharing ("What worked for you?"). Gently question reflexive positivity that shuts others down. [synthesis]

5.10 Suicidal talk and requests about assisted dying. See 4.13: group response plus individual risk assessment and safety planning, with palliative-care liaison. Know the local legal status of assisted dying and your service's policy. Respond to questions with exploration and referral to the treating team, not advocacy [synthesis].

5.11 Leader burden and countertransference. Repeated deaths of members expose leaders to grief and to avoidance of death talk. Use co-leadership and regular supervision. Leaders need their own space to mourn. [synthesis] Stanford produced training DVDs, and Classen and colleagues developed a training programme for SEGT therapists, which suggests formal training is advisable. [source: Stanford Training DVD page; training programme [uncertain]]

5.12 Modality-specific risks. (1) Exposure to deterioration and death of peers can initially raise distress, especially in members with less advanced disease. Use composition by stage and preparation (4.1). (2) Low-distress members may gain little. Benefit in the Canadian trial was concentrated in distressed women. [source: Goodwin et al. 2001 abstract] (3) Do not tell members the group will prolong survival. The Canadian multicentre trial did not find a survival effect. [source: Goodwin et al. 2001 abstract] (4) Self-hypnosis supplements medical pain management and never replaces it. [synthesis]

Sources

Sources:

Further reading (not drawn on; details drawn from them are tagged [uncertain]):

  • Spiegel, D., & Classen, C. (2000). Group Therapy for Cancer Patients: A Research-Based Handbook of Psychosocial Care. Basic Books.
  • Spiegel, D., & Spira, J. Supportive-Expressive Group Therapy: A Treatment Manual of Psychosocial Intervention for Women with Recurrent Breast Cancer. Stanford University.
  • Classen, C., Diamond, S., Soleman, A., Fobair, P., Spira, J., & Spiegel, D. Brief Supportive-Expressive Group Therapy for Women with Primary Breast Cancer: A Treatment Manual. Stanford University.
  • Spiegel, D., Bloom, J. R., & Yalom, I. (1981). Group support for patients with metastatic cancer: a randomized outcome study. Archives of General Psychiatry, 38, 527–533.
  • Spiegel, H., & Spiegel, D. (1978; 2nd ed. 2004). Trance and Treatment: Clinical Uses of Hypnosis. American Psychiatric Publishing.
  • Classen, C., et al. (2001). Supportive-expressive group therapy and distress in patients with metastatic breast cancer. Archives of General Psychiatry, 58, 494–500 (abstract only).
  • Goodwin, P. J., et al. (2001). New England Journal of Medicine, 345, 1719–1726 (abstract only).
  • Kissane, D. W., et al. (2004). Psycho-Oncology, 13, 755–768 (abstract only).
  • Yalom, I. D. (1980). Existential Psychotherapy. Basic Books.